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Pernicious Anaemia: the Forgotten Disease - the causes and consequences of vitamin B12 deficiency, by Martyn Hooper
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This book could save you years' of ill health! Vitamin B12 deficiency, often caused by pernicious anaemia, can be a devastating condition if left untreated, leading to irreversible nerve damage and disability after years of exhaustion and mental 'fog'. Its symptoms creep up on sufferers and are under-recognized by doctors; tests to confirm it and underlying pernicious anaemia, are problematic. Martyn Hooper, the founder of the Pernicious Anaemia Society, now brings together vital information about the condition and real-life stories- including his own and those of many members of the Society - that will help sufferers and their friends and families recognize the condition and understand how best to tackle it. In particular, the book draws on the findings of a survey of Society members that give new clarity to the complex issues involved.
1. My story
2. Blood, vitamins and B12
3. Sources of B12
4. The symptoms of B12 deficiency
5. Problems with diagnosing B12 deficiency
6. Pernicious anaemia, intrinsic factor and vitamin B12
7. Problems with diagnosing pernicious anaemia
8. Treating pernicious anaemia
9. Sub-acute combined degeneration of the spinal cord secondary to pernicious anaemia
10. The future
- Sales Rank: #1554669 in Books
- Published on: 2012-06-30
- Original language: English
- Number of items: 1
- Dimensions: 8.50" h x .55" w x 5.43" l, .0 pounds
- Binding: Paperback
- 160 pages
Review
This book is to be warmly welcomed. It is a vivid and very well-written account of a 'hidden chapter' in medicine that ought to be widely known among the public at large, among policy-makers, and among medical professionals. A major reappraisal of how we define, diagnose and treat B12-deficiency is needed, and this book is a trail-blazer for this mission. --A. David Smith, Professor Emeritus of Pharmacology, University of Oxford, UK, and Helga Refsum, Professor of Nutrition, University of Oslo, Norway, and Visiting Professor of Human Nutrition, University of Oxford, UK
About the Author
Martyn Hooper founded the Pernicious Anaemia Society after being forced to give up full time work as a lecturer in Further Education owing to the long term effects of undiagnosed pernicious anaemia and vitamin B12 deficiency. He now runs the Society full time, and campaigns for improvements in diagnosis and treatment of these conditions.
Most helpful customer reviews
8 of 8 people found the following review helpful.
A patient-friendly guide to understanding pernicious anaemia
By Zeena Nackerdien
Pernicious anaemia (British spelling; PA) refers to reduced blood cells when the intestines cannot properly absorb vitamin B12 (due to a lack of intrinsic factor in gastric secretions). Since earlier studies showed that PA could be treated with vitamin B12, it is possible that this discovery, along with the availability of standard blood tests, may have led to the assumption that PA had been conquered (hence the reference to "The Forgotten Disease"). The author uses his own experience and those of others to illustrate that under- and misdiagnosis of this autoimmune disease are common occurrences. While many patients are only mildly inconvenienced by downstream symptoms such as excessive fatigue, other sufferers can experience life-changing neurological, hematological, and other consequences. Ultimately, the reader is taken on a refreshingly, jargon-free journey from the author's own diagnosis to joining forces with others in an attempt to understand the disease etiology, vitamin B12 sources, problems with diagnosis (using case studies), and treatment gaps. This book is an extremely helpful resource.
4 of 4 people found the following review helpful.
I hope this Book brings about more awareness!
By Sue Little
If you suffer from Pernicious Anemia/Vitamin B12 Deficiency then I highly recommend this book. It delves into the rollercoaster of misdiagnosis and unnecessary tests we often have to endure in order to get diagnosed and treated. It also explaines the differences in treatment, such as sublingual vitamins and self injection. Very Good Book!!
4 of 4 people found the following review helpful.
The need for early detection
By Eric Norman
As a researcher in pernicious anemia and vitamin B12 deficiency for over 30 years, I encourage others to read this book. Written from the heart, Mr. Hooper describes his personal experience with walking difficulties and mental symptoms and delays in diagnosis until finally pernicious anemia is discovered but too late to prevent full recovery with treatment. This story is common for pernicious anemia patients. There is a milder form of subclinical vitamin B12 (affecting millions in the USA) which can be just as deadly over time, leading to Alzheimer Disease and other neurological disability. The book contains valuable information such as a listing of common symptoms reported by members of the Pernicious Anemia Society. This work will benefit the public and medical professionals in encouraging early diagnosis and treatment of vitamin B12 deficiency thereby preventing permanent neurological disability. Eric J. Norman, Ph.D.
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